Patient Involvement Clause Samples

Patient Involvement. The Sanctuary will involve the people who use the service at all levels of the organisation and in all aspects of its development, including training and recruitment. • Real time feedback will be sought and used to develop the service to ensure it meets the changing needs of the service users. • Other feedback will also be sought including the possible inclusion of an independent evaluation of the service 2.5 Days/hours of operation The preferred operating hours for the Bristol Sanctuary are Friday, Saturday, Sunday and Monday, 7pm to 2am. This is based on the experiences of Leeds and Corby Crisis Sanctuaries and on the Bristol self-harm surveillance register. The later shows that the peak time for attendances at the Emergency Department at the BRI in 2012 was 10pm to midnight. Almost a fifth (19.2%) of all presentations occurred within these three hours of the day. We do not have local frequency data on which day of the week most suicides occur, however, Leeds do have that data, and it shows that most suicides in Leeds occur on a Monday. The Leeds Survivor Led Crisis Service experience their greatest demand on a Monday night. Once operational, the provider of the Bristol Sanctuary will be encouraged to review the operating hours and test other options, such as opening during the day time at weekends.
Patient Involvement. The steering committee of the patient organization “Das frühgeborene Kind e. V.” is aware of the study. This organization consists of parents of former preterm infants and also actively participates in other scientific studies in Germany. Regular telephone conferences with this organization will be held to exchange information. The PIs are available for consultations by the patient organization concerning mucous fistula refeeding and will update the steering committee on recent publications and evidence-based recommendations.