Model Data Use Certification AgreementData Use Certification Agreement • December 25th, 2023
Contract Type FiledDecember 25th, 2023The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • May 7th, 2023
Contract Type FiledMay 7th, 2023The National Institute on Aging (NIA) has established the NIA Genetics of Alzheimer’s Disease Data Storage Site (NIAGADS) as a resource to serve as a repository for many types of data generated by NIA supported grants and cooperative agreements and/or NIA funded biological samples. NIAGADS operates under the NIH Genomics Data Sharing Policy (GDS) and the NIA Genomics of Alzheimer’s Disease Data Sharing Policy . Because the human genomic and phenotypic data contained in NIAGADS is, in some instances, potentially sensitive information, e.g., data related to the presence or risk of developing Alzheimer’s Disease and related neurodegenerative disorders, and information regarding family relationships or ancestry, data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • April 6th, 2023
Contract Type FiledApril 6th, 2023The National Institute on Aging (NIA) has established the NIA Genetics of Alzheimer’s Disease Data Storage Site (NIAGADS) as a resource to serve as a repository for many types of data generated by NIA supported grants and cooperative agreements and/or NIA funded biological samples. NIAGADS operates under the NIH Genomics Data Sharing Policy (GDS) and the NIA Genomics of Alzheimer’s Disease Data Sharing Policy . Because the human genomic and phenotypic data contained in NIAGADS is, in some instances, potentially sensitive information, e.g., data related to the presence or risk of developing Alzheimer’s Disease and related neurodegenerative disorders, and information regarding family relationships or ancestry, data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
Model Data Use Certification AgreementData Use Certification Agreement • May 17th, 2022
Contract Type FiledMay 17th, 2022The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
Model Data Use Certification AgreementData Use Certification Agreement • April 30th, 2022
Contract Type FiledApril 30th, 2022The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
Model Data Use Certification AgreementData Use Certification Agreement • March 26th, 2022
Contract Type FiledMarch 26th, 2022The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
MODEL DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • February 5th, 2022
Contract Type FiledFebruary 5th, 2022The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
MODEL DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • July 14th, 2021
Contract Type FiledJuly 14th, 2021The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
MODEL DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • July 14th, 2021
Contract Type FiledJuly 14th, 2021The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
MODEL DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • July 14th, 2021
Contract Type FiledJuly 14th, 2021The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • October 28th, 2020
Contract Type FiledOctober 28th, 2020The National Institute on Aging (NIA) has established the NIA Genetics of Alzheimer’s Disease Data Storage Site (NIAGADS) as a resource to serve as a repository for many types of data generated by NIA supported grants and cooperative agreements and/or NIA funded biological samples. NIAGADS operates under the NIH Genomics Data Sharing Policy (GDS) and the NIA Genomics of Alzheimer’s Disease Data Sharing Policy . Because the human genomic and phenotypic data contained in NIAGADS is, in some instances, potentially sensitive information, e.g., data related to the presence or risk of developing Alzheimer’s Disease and related neurodegenerative disorders, and information regarding family relationships or ancestry, data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
DATA USE CERTIFICATION AGREEMENTData Use Certification Agreement • January 10th, 2020
Contract Type FiledJanuary 10th, 2020The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.