TO: Investigators Requesting Data and/or Analyses from iCureCeliac® FROM:September 1st, 2016
FiledSeptember 1st, 2016Data collection, data analyses or access to record-level data from Celiac Disease Foundation’s iCureCeliac® Patient Registry must be approved by the CDF Research Committee. To uniformly address the requests and ensure that we meet privacy standards, CDF has developed a R e s e a r c h P r o p o s a l F o r m a n d Data Access and Confidentiality Agreement, which must be executed prior to data collection, analyses or access by the investigator. We anticipate that the review process for data requests will take approximately eight weeks after receipt of a complete research proposal form. If a data request represents a significant time commitment to fulfill, we will advise you of our proposed t imeline and any potential costs to address your request.