mapMECFS Data Submission AgreementData Submission Agreement • February 22nd, 2024
Contract Type FiledFebruary 22nd, 2024The mapMECFS Data Access & Quality Committee (DAQ) approves submission of data to the data platform https://mapmecfs.org. The DAQ will review the mapMECFS Data Submission Request and decide whether to permit the submission based on the expectations outlined in the mapMECFS policy. If submissions raise concerns related to privacy and confidentiality, risks to populations or groups, or other concerns, the DAQ will consult with other experts as appropriate. In unusual circumstances, when people are denied approval to submit data, appeals may be sent to the National Institutes of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS) staff representative to the DAQ.