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Foundation for Sarcoidosis Research Patient Registry Data Application and Confidentiality-Usage AgreementMarch 22nd, 2019
Record-level data from the Foundation for Sarcoidosis Patient Registry (FSR-S.A.R.C.) must be approved by the FSR-S.A.R.C. Patient Registry Committee. To uniformly address the requests and ensure that we meet privacy standards, FSR has developed a Data Application and Confidentiality-Usage Agreement, which includes our data access and publication policy. We anticipate that the review process for data requests will take approximately four to eight weeks after receipt of a complete data application. If a data request represents a significant time commitment to fulfill, we will advise you of our proposed timeline and any potential costs to address your request.
