HeLa Genome Data Use AgreementHela Genome Data Use Agreement • May 31st, 2024
The National Institutes of Health (NIH) database of Genotypes and Phenotypes (dbGaP) contains human genomic data and related information from research participants. In order to protect the privacy of those participants, NIH can control access to the use of the data by other researchers. Data access will be provided to research investigators who, along with their institutions, have certified their agreement with the expectations and terms of access detailed below. The HeLa Genome Data Access Working Group of the Advisory Committee to the NIH Director (ACD) will be responsible for reviewing any applications for access to the HeLa genome data in dbGaP determine whether they satisfy all of the terms and restrictions described here. The HeLa Genome Data Access Working Group’s findings will be reported to the ACD, and the ACD will make recommendations to the NIH Director about whether a request should be approved or disapproved.
