Rescinding Consent. For all primary uses of NAACCR submissions, a registry director has the opportunity to change his or her mind and rescind that consent up to the time that the files go into production to produce the various products. Thus, it is important that every registry be familiar with their data file before it is submitted. We suggest that each registry examine frequency distributions of every variable on the file and check incidence rates to identify outliers. With regard to special studies, once the dataset has been produced and released to a researcher, consent may be rescinded. However, a researcher may have already conducted analysis on the original file or presented/published data. If a registry rescinds consent, we immediately remove the registry’s data from the research file, instruct the researcher to destroy any exported data for that registry, and instruct the researchers to remove the registry’s data from any pending or future presentations/publications. Attachment B: DATA CONFIDENTIALITY AGREEMENT FOR NAACCR RESEARCHERS NOT INTENDED FOR COMPLETION BY REGISTRIES Agreement executed this Day of 20 By and between (“Researcher”) of Organization City State/Province and NORTH AMERICAN CENTRAL CANCER REGISTRIES, INC. ("NAACCR"), a California corporation. Researcher is engaged in research into the causes, control, or prevention of cancer, specifically described as follows: NAACCR collects and maintains certain research data (the "Data") that will or may assist Researcher in this regard. Researcher agrees and acknowledges that patient confidentiality is of the utmost importance in the use of the Data and in the manner in which all research results are presented and/or published. Accordingly, in consideration of his/her receipt of the Data from NAACCR, Researcher agrees as follows:
Rescinding Consent. For all primary uses of NAACCR submissions, a registry director has the opportunity to rescind consent up to the time that the files go into production to produce the various products. Thus, it is important that every registry be familiar with their data file before it is submitted. With regard to special studies, once the dataset has been produced and released to a researcher, consent may still be rescinded. However, a researcher may have already conducted analysis on the original file or presented/published data. If a registry rescinds consent, we immediately remove the registry’s data from the SEER*Stat research file, instruct the researcher to destroy any exported data for that registry, and instruct the researchers to remove the registry’s data from any pending or future presentations/publications. Attachment B: DATA CONFIDENTIALITY AGREEMENT FOR NAACCR RESEARCHERS NOT INTENDED FOR COMPLETION BY REGISTRIES Agreement executed this Day of 20 By and between (“Researcher”) of Organization City State/Province and NORTH AMERICAN CENTRAL CANCER REGISTRIES, INC. ("NAACCR"), a California corporation. Researcher is engaged in research into the causes, control, or prevention of cancer, specifically described as follows: NAACCR collects and maintains certain research data (the "Data") that will or may assist Researcher in this regard. Researcher agrees and acknowledges that patient confidentiality is of the utmost importance in the use of the Data and in the manner in which all research results are presented and/or published. Accordingly, in consideration of his/her receipt of the Data from NAACCR, Researcher agrees as follows:
Rescinding Consent. For all primary uses of NAACCR submissions, a registry director has the opportunity to change his or her mind and rescind that consent up to the time that the files go into production to produce the various products. Thus, it is important that every registry be familiar with their data file before it is submitted. We suggest that each registry examine frequency distributions of every variable on the file and check incidence rates to identify outliers. With regard to special studies, once the data set has been produced and released to a researcher, consent may not be rescinded. Attachment B: DATA CONFIDENTIALITY AGREEMENT FOR NAACCR RESEARCHERS NOT INTENDED FOR COMPLETION BY REGISTRIES Agreement executed this Day of 20 By and between (“Researcher”) of Organization City State/Province and NORTH AMERICAN CENTRAL CANCER REGISTRIES, INC. ("NAACCR"), a California corporation. Researcher is engaged in research into the causes, control, or prevention of cancer, specifically described as follows: NAACCR collects and maintains certain research data (the "Data") that will or may assist Researcher in this regard. Researcher agrees and acknowledges that patient confidentiality is of the utmost importance in the use of the Data and in the manner in which all research results are presented and/or published. Accordingly, in consideration of his/her receipt of the Data from NAACCR, Researcher agrees as follows:
