Management of Care and Information Domain Sample Clauses

Management of Care and Information Domain. This domain dealt with the aspects of managed medical care that patients described as necessary and helpful. 80% of patients described information as being valuable and essential, and expressed gratefulness for the ability to have a large amount of information about the disease and its management, as well as the ability to have honest discussions with care providers. Several participants (patients and family members, N=3) expressed appreciation for the timing of interventions, specifically citing the value of preventive and proactive care in maintaining the quality of life. Two (2) patients expressed some concerns about their care. These patients raised concerns about the cost of care, a fear of wasting time and money on ineffective therapies, and perceived insufficient individualization of care. One (1) patient expressed frustration over his inability to receive care he desired due to the fact that his medical presentation did not meet the requirements for insurance reimbursement, despite the fact that he very much felt he needed care. The system’s kind of flawed I think because… it kind of covers a, a base or… it’s like a blanket care system, it’s not like individual. And I understand that that’s almost financially not feasible, but I guess people who have the money, they can kind of tailor whatever kind of support they need. But when you don’t have the money, you can only rely on what’s available through the system which kind of blankets everybody… And, like for me, I could use some assistance at home, but because I still drive a car and I’m not home bound, then they’re not willing to listen to me on that. (Patient)