GOVERNANCE OF NEWLY CREATED COMBINED DATA SETS. The MP Organisation providing the data remains the owner of the data. It is proposed that the Project Data Custodian of the newly created combined data set is the Chief Investigator listed on the data sharing project. The Project Data Custodian has responsibility for correct data storage, access and disposal. Only project personnel approved by the relevant HREC would have access to the combined data set. The storage location of a combined data set will be agreed upon on a project-by-project basis and requires ethics approval by the HREC assessing the project. The storage facility will need to satisfy the security principles detailed in Section 6.7. Data custodianship of the newly formed dataset and location of data storage would be agreed upon and specified prior to HREC approval of any such data-sharing project (see also Section 5.2). Any new information arising from the combined dataset will be reported back to the contributing MP Organisations (See Agreement Clause 13), (with up front agreed timelines and processes) prior to dissemination of any findings. Subject to confirmation by the disclosing MP Organisation, the name of the MP Organisation(s) providing data will be acknowledged in any publication or report that arises from the use of the data.
