APPOINTMENT OF A PROJECT DATA MANAGER. Each Monash Partners (MP) Organisation contributing data should appoint a Data Manager to oversee the sharing of data for the project. The Project Data Manager (who is not the Data Custodian) is the nominated employee of the MP Organisation that will facilitate the disclosure of the data. The Project Data Manager will be involved in coordinating the validation, cleaning and de-identification of data prior to transfer out of the MP Organisation. It is expected that the Project Data Manager would work in conjunction with the data extraction team (which could at times be a third-party contractor). The Project Data Manager will have custody of any encryption key involved in the de- identification of data and should be named in the Site-Specific Application. It is expected that the Project Data Manager would work in conjunction with the data extraction team and provide a safe pathway of communication between those involved in the raw data extraction process and the researchers. It is envisaged that it may be necessary for a researcher (analysing de-identified data outside of the MP Organisation) to query the field value of a specific piece of data. Such queries can be answered by the Project Data Manager who has access to the encryption key, and thus the source data, without revealing any identifiable information to the researcher.
