Non-Identification. Approved Users agree not to use the requested datasets, either alone or in concert with any other information, to identify or contact individual participants from whom data and/or samples were collected. Approved Users also agree not to generate information (e.g., facial images or comparable representations) that could allow the identities of research participants to be readily ascertained. These provisions do not apply to research investigators operating with specific IRB approval, pursuant to 45 CFR 46, to contact individuals within datasets or to obtain and use identifying information under an 2 The project anniversary date can be found in “My Projects” after logging in to the dbGaP authorized-access portal. IRB-approved research protocol. All investigators including any Approved User conducting “human subjects research” within the scope of 45 CFR 46 must comply with the requirements contained therein.
Non-Identification. Approved User agrees not to use the requested datasets, either alone or in concert with any other information, to identify or contact individual participants from whom data and/or samples were collected. This provision does not apply to research investigators operating with specific IRB approval, pursuant to 45 CFR 46, to contact individuals within datasets or to obtain and use identifying information under an IRB approved research protocol. All investigators including any Approved User conducting “human subjects research” within the scope of 45 CFR 46 must comply with the requirements contained therein.
Non-Identification. Recipient and Recipient’s PI agree that Materials and/or Data will not be used, either alone or in conjunction with any other information, in any effort to determine the individual identities of any of the participants from whom Data and/or Materials were obtained or derived.
Non-Identification. Recipient agrees that Data will not be used, either alone or in conjunction with any other information, in any effort whatsoever to establish the individual identities of any of the subjects from whom Data were obtained.
Non-Identification. Approved Users agree not to use the requested datasets, either alone or in concert with any other information, to identify or contact individual participants from whom data and/or samples were collected. Approved Users also agree not to generate information (e.g., facial images or comparable representations) that could allow the identities of research participants to be readily ascertained. These provisions do not apply to research investigators operating with specific IRB approval, pursuant to 45 CFR 46, to contact individuals within datasets or to obtain and use identifying information under an IRB-approved research protocol. All investigators including any Approved User conducting “human subjects research” within the scope of 45 CFR 46 must comply with the requirements contained therein.
Non-Identification. The PI agrees not to use the Research Materials, either alone or in concert with any other information, to identify or contact individual STUDY subjects without specific approval to contact STUDY subjects obtained from the IRB(s) responsible for the STUDY.
Non-Identification. The RECIPIENT(S) agree to ensure that none of the APPROVED USERS will use the DATA, either alone or in combination with any other information, to attempt to identify or contact individual CLINICAL TRIAL participants. Moreover, they agree not to present or publish any information that would allow identification of CLINICAL TRIAL participants.
Non-Identification. The Recipient will not contact or make any effort to identify individuals who are or may be the sources of the Human Material, without specific written approval from the Provider. For Human Material made available by the Repository for which participants may be re-contacted for future research, the Investigator may request additional information about the Human Material. The Recipient agrees that if Recipient requires additional information about the Human Material, it will contact the Provider to request the additional information.
Non-Identification. Approved Users agree not to use the requested datasets, either alone or in concert with any other information, to identify or contact individual participants from whom data (including facial images) and/or samples were collected. All investigators conducting “human subjects research” within the scope of 45 CFR 46 must comply with the requirements contained therein.
Non-Identification. Approved Users agree not to use the requested datasets, either alone or in concert with any other information, to identify or contact individual participants from whom phenotype data (including facial images) and DNA samples were collected.
