HUS Sample Clauses

HUS. Dataset Name PROSHUS Prospective pilot data set of HUS Owner organization Helsinki University Hospital, Comprehensive Cancer Center Dataset description Dataset description (informal meta-data) BOUNCE prospective pilot data of 250 patients treated in HUS including the information collected to the NOONA platform. This information includes psychosocial and quality of life questionnaires and side-effects reported by the patient and medical and treatment data collected from the hospital registry by the trial nurse. Data type: csv Data will be collected during the project M12-38 Data is needed for the modelling and validation of resilience predictor. Whole data has long term value Formal Meta-data Data dictionary is already available. Standards No specific standard is used Origin NOONA, HUS Patient record registry Uranus Language Finnish, English Size At most 1MB of data Variety Fully structured Type Numeric mostly in CSVs Format csv Velocity Data are being produced in certain intervals during the project. Storage BOUNCE data infrastructure Quality The quality of the data is already high. Additional cleaning mechanisms (e.g. missing values handling) will be implemented by the cleaning mechanism of the BOUNCE data infrastructure. Example N/A Data sharing and ownership Availability The whole dataset available under specific conditions (only for the WPs and partners who have to process the data according the study protocol, data sharing agreements for confidentiality and security according to GDPR)) Availability after the end of the project The whole dataset available under specific conditions (as above) for five years after the end of the project Sharing mechanisms Sent to WP3 by uploading the CSV/XLS file in the secure file repository. Then stored in the BOUNCE data infrastructure. Further accessible only through the data access APIs. Data Handling How the data are going to be used during XXXXXX’s lifetime Data is shared through secured link to partners who are involved in WPs regarded to processing of the data, modelling, model computational implementation and integration and performance evaluation and analysis. The usage of data is described in the data sharing agreements. How the data are going to be used after XXXXXX’s lifetime As will be agreed Related WPs Data is generated in WP6 and will be used in WP4, WP5, WP6 and WP7. Access rights As described in the data sharing agreements. Anonymisation / Pseudonumisation Data are pseudonymised and coded before the d...
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HUS. In HUS routine psychosocial assessments are not routinely conducted. Resilience estimation is based on the oncologist´s or nurse´s clinical experience. If they recognize the need for psychosocial support, the patient is referred to the psychosocial unit consisting of psychiatrists, psychologists, and a nurse trained on basic counselling techniques. Normal patient records are used to report patient´s psychosocial wellbeing, and psychiatrist uses Warwick-Edenburg Mental Well-Being-Scale for some patients. Patient support is based on personal contact and supportive discussions. The number and timing of these sessions varies depending on individual needs. In an acute psychiatric crisis or illness patient is referred to the HUS Psychiatry Department. If patients use Noona they can report all their symptoms (including cognitive and psychological complaints) to Noona. Otherwise the possible information is only in the patients records and not easily available.

Related to HUS

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