PATIENT AND PARENT DISSEMINATION Sample Clauses

PATIENT AND PARENT DISSEMINATION. Right from the project start, basis for a close interaction with stakeholders of relevance to the XXXX project by creating a best practice dissemination guide and the corporate project identity was defined by considering the voice of patients and parents, professionally represented by the Children’s Heart Federation (CHF). A project website (xxx.xxxx-med.eu) and detailed print material were created to ensure patients and parents are fully informed about the possibilities of this study and recognize the XXXX partners as competent experts in the field of paediatric cardiology. CHF has worked closely with the Board of ECHDO (The European Congenital Heart Disease Organisation) to ensure that information about the XXXX project is communicated in a harmonized manner across Europe and the information about this important study is accessible to patients in all countries. CHF has disseminated information on XXXX project across to a wide range of audience, although its priority audience has been patients and their parents or caregivers. It has used a range of media including: - Leaflets: The flyer has been completed and is in English but will be translated into appropriate languages. - Presentations at meetings and exhibitions for either or both clinicians or parents/caregivers - Websites and Social Media (xxx.xxxx-med.eu, xxx.xxxxx.xx, xxx.xxxxx.xxx and CHF’S twitter and facebook accounts) - A short animated film, with a narrative that can easily be translated into other languages and that is appropriate for publication on the web-site of patient organisations, on social media such as Twitter and on sites such as YouTube. The film emphasises the need to develop medicines for children using the XXXX study as the main example, thus ensuring that the film has a long life enabling it to reach a wide audience. It has been produced in a manner that allows easy translation into other national languages Figure 3: "XXXX" and #meds4kids animated video created by XXXX partner 8, Children's Heart Federation Beyond project duration, the XXXX website (xxx.xxxx-med.eu) presents the “XXXX” concepts, the methods and the teams to medical professionals and scientists as well as patients and parents of hospitalised children.
Sample 1
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