Research Use Reporting. To assure adherence to NIH GDS Policy, the PI agrees to provide annual Progress Updates as part of the annual Project Renewal or Project Close-out processes, prior to the expiration of the one (1) year data access period. The PI who is seeking Renewal or Close-out of a project agree to complete the appropriate online forms and provide specific information such as how the data have been used, including publications or presentations that resulted from the use of the requested dataset(s), a summary of any plans for future research use (if the PI is seeking renewal), any violations of the terms of access described within this Agreement and the implemented remediation, and information on any downstream intellectual property generated from the data. The PI also may include general comments regarding suggestions for improving the data access process in general. Information provided in the progress updates helps NIH evaluate program activities and may be considered by the NIH GDS governance committees as part of NIH’s effort to provide ongoing stewardship of data sharing activities subject to the NIH GDS Policy.
Research Use Reporting. To assure that NIH policies and procedures for genomic data use are adhered to, Approved Users agree to provide to the NHLBI Data Access Committee annual feedback on how these data have been used and any results that have been generated as a result of access to the data, including patents and publications. This information will be used by the NHLBI Data Access Committee staff for program evaluation activities, and may be considered by the NIH GWAS Governance committees as part of the NIH effort to provide ongoing oversight and management of all NIH genomic data sharing activities. Approved Users thus agree to provide a brief Annual Data Use Report on the research specified within the DAR submitted with this DUC. Approved Users who are seeking renewal agree to provide specific information in a renewal DAR. Those not seeking renewal agree to provide specific information to the Data Access Committee via the contact information below. Annual Data Use Reports will provide information regarding potentially significant findings and publications or presentations that resulted from the use of the requested dataset(s), a summary of any plans for future research use, any violations of the terms of access described within this Data Use Certification and the implemented remediation, and information on any downstream intellectual property generated as a result of the data. Approved Users also may include general comments regarding topics such as the effectiveness of the NIH genomic data access process (e.g., ease of access and use), appropriateness of data format, challenges in following the policies, and suggestions for improving data access or the program in general if desired. Approved Users agree to send the Annual Data Use Report prior to the anniversary of the Approved Access Date assigned by the DAC and specified within the manifest file provided to Approved Users by the NIH Data Repository at the time that data access is provided. It is agreed that the Annual Data Use Report will be shared with the NIH within the context of a renewal Data Access Request, or via a letter signed by the Institutional Signing Official and the Approved User. NHLBI Data Access Committee Chair Email: xxxxxxxxxxxxxxxx@xxxx.xxx.xxx
Research Use Reporting. To assure adherence to NIH policies and procedures for genomic data, Approved User agrees to provide annual progress updates as part of the annual Project Renewal or Project Close-out processes, prior to the expiration of the one-year data access period. An Approved User who is seeking renewal or close-out of a project agrees to complete the appropriate online forms and provide specific information such as how the data was used, including publications or presentations that resulted from the use of the requested dataset(s), a summary of any plans for future research use (if the Approved User is seeking renewal), any violations of the terms of access described within this Agreement and the implemented remediation, and information on any downstream intellectual property generated from the data. The Approved User also may include general comments regarding topics such as the effectiveness of the data access process (e.g., ease of access and use), appropriateness of data format, challenges in following the policies, and suggestions for improving data access or the program in general. Information provided in the progress updates helps NIH evaluate program activities and may be considered by the NIH GDS governance committees as part of NIH’s effort to provide ongoing oversight and management of data sharing activities subject to the GDS Policy.
Research Use Reporting. To assure adherence to NIH policies and procedures for genomic data, PIs agree to provide annual progress updates as part of the annual project renewal or project close-out processes, prior to the expiration of the 1-year data access period. PIs who are seeking renewal or close-out of a project agree to complete the appropriate online forms and provide specific information such as how the data have been used, including publications or presentations that resulted from the use of the requested dataset(s), a summary of any plans for future research use (if the requester is seeking renewal), any violations of the terms of access described within this Data Use Certification Agreement and the implemented remediation, and information on any downstream intellectual property generated from the data. PIs also may include general comments regarding topics such as the effectiveness of the data access process (e.g., ease of access and use), appropriateness of data format, challenges in following the policies, and suggestions for improving data access or the program in general. Information provided in the progress updates helps NIH evaluate program activities and may be considered by the NIH GDS governance committees as part of NIH’s effort to provide ongoing oversight and management of data sharing activities subject to the GDS Policy.
Research Use Reporting. (a) Approved User and Accessing Institution agree to provide a Progress Update at the expiration of the one (1) year data access period.
(b) If Approved User seeks renewal of the data access period for an additional year, Approved User must submit a new DAR and agree and sign a new DUA for review and approval by XXXXX.
Research Use Reporting. Investigator will provide a brief Progress Report summarizing the progress of the Research Project specified in data access request after one year, and annually thereafter until completion of the research or termination of this MTA. The Progress Report is submitted in accordance with OMB#0925-0001 (Research and Research Training Grant Applications and Related Forms) and will include a brief update on the research, including the potential significance of any findings and plans for future research; any resulting scientific presentations with the name, bibliographic citation (if any) and submission date; any publications resulting from the use of data from the eyeGENE® Repository with the title, authors, bibliographic citation, and submission date of the publication; any breaches in data security (for example, accidental data distribution beyond approved users); a brief description of any non-proprietary downstream intellectual property generated or intended to be generated as a result of using this data; and analyzed and raw data collected thus far. In addition, upon conclusion of the Research Project or termination of this Agreement, Investigator agrees to provide a comprehensive, written, final report (“Final Report”) to Provider with all analyzed and raw data, results, and conclusions of the Research Project. All analyzed and raw data included in the reports required under this Article 7 will be submitted to eyeGENE BRICS meta-study or through another means agreed upon by Provider and Recipient.
Research Use Reporting. Prompt publication or other public disclosure of the results of the Research Plan is encouraged. When requested by the NHLBI, the RECIPIENT and PI agree to ensure that all APPROVED USERS will respond to requests for information about the function and effectiveness of the NHLBI Biological Specimen and Data Repository Information Coordinating Center Research Material access process (e.g., ease of access and use; appropriateness of STUDY data format, challenges in following the policies; suggestions for improving research material access; or the program in general).
Research Use Reporting. Investigator will provide a brief Progress Report summarizing the progress of the research specified in the data access request after one year, and annually thereafter until completion of the research or termination of this MTA. The progress report is submitted in accordance with OMB#0925-0001 (Research and Research Training Grant Applications and Related Forms) and will include a brief update on the research, including the potential significance of any findings and plans for future research; any resulting scientific presentations with the name, bibliographic citation (if any) and submission date; any publications resulting from the use of data from the eyeGENE® Repository with the title, authors, bibliographic citation, and submission date of the publication; any breaches in data security (for example, accidental data distribution beyond approved users); and a brief description of any non-proprietary downstream intellectual property generated or intended to be generated as a result of using this data.
Research Use Reporting. To assure adherence to NIH and WIHS policies and procedures for genomic data, PIs agree to provide annual progress updates on how these data have been used, including presentations, publications, and the generation of intellectual property. This information helps WIHS evaluate program activities and may be considered by the WIHS governance committees as part of NIH’s effort to provide ongoing oversight and management of WIHS genomic data sharing activities. As stipulated in the WIHS Data Use Agreement, progress updates must be provided as part of the annual project renewal or project close-out processes, prior to the expiration of the 1-year data access period. PIs who are seeking renewal or close-out of a project agree to complete the appropriate online forms and provide specific information such as publications or presentations that resulted from the use of the requested dataset(s), a summary of any plans for future research use, any violations of the terms of access described within this DUA and the implemented remediation, and information on any downstream intellectual property generated from the data. PIs also may include general comments regarding topics such as the effectiveness of the data access process (e.g., ease of access and use), appropriateness of data format, challenges in following the policies, and suggestions for improving data access or the program in general. Note that any inadvertent or inappropriate data release incidents should be reported to WDMAC (xxxxx.xxxxx@xxx.xxx) according to the agreements and instructions under Term 5.
Research Use Reporting. To assure adherence to NIH policies and procedures for genomic data, Approved Users agree to provide annual progress updates on how these data have been used, including presentations, publications, and the generation of intellectual property. This information helps NIH evaluate program activities and may be considered by the NIH governance committees as part of NIH’s effort to provide ongoing oversight and management of NIH genomic data sharing activities. Progress updates are provided as part of the annual project renewal or project close-out processes, prior to the expiration of the 1-year data access period. Approved Users who are seeking renewal or close-out of a project agree to complete the appropriate online forms and provide specific information such as publications or presentations that resulted from the use of the requested dataset(s), a summary of any plans for future research use, any violations of the terms of access described within this DUC and the implemented remediation, and information on any downstream intellectual property generated from the data. Approved Users also may include general comments regarding topics such as the effectiveness of the data access process (e.g., ease of access and use), appropriateness of data format, challenges in following the policies, and suggestions for improving data access or the program in general.
